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Simone Boselli Email
Director Public Affairs . EURORDIS
Paris,
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EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 800 rare disease patient organisations from more than 70 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services. Our vision: Better lives and cures for people living with a rare disease Our mission: EURORDIS-Rare Diseases Europe works across borders and diseases to improve the lives of people living with a rare diseaseEURORDIS Address
1 Alpha DrParis, null
France