Ruth Acton Email

Director Finance Administration . Friedreich's Ataxia Research Alliance (FARA)

Current Roles

Employees:
49
Revenue:
$4M
About
The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances. FARA was founded in September 1998 by a group of patient families and three of the world’s leading FA scientists — Drs. Rob Wilson, Bronya Keats, and Massimo Pandolfo. It was staffed and managed as an all volunteer organization until late 2005. FARA's leadership and numerous patient families and friends have raised critical funds over the years to support FA research. Thanks to the brilliant and committed efforts of many FA scientists, we now understand the cause of FA and specific mechanisms leading to damage in FA patients. These understandings allow for more targeted approaches to treatment which are currently being developed for clinical trials.
Friedreich's Ataxia Research Alliance (FARA) Address
533 W. Uwchlan Ave
Downingtown, PA
United States
Friedreich's Ataxia Research Alliance (FARA) Email
Friedreich's Ataxia Research Alliance (FARA) Phone Numbers
540-895-7188

Past Companies

Friedreich's Ataxia Research Alliance (FARA)Director of Finance Administration
Friedreich's Ataxia Research Alliance (FARA)Board of Directors Treasurer
Schering-PloughManager - Finance and Accounting

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