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Maynard Friesz Email
VP Policy & Advocacy . Cure SMA
Elk Grove Village, IL
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Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA)a disease that takes away a person's ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. Since 1984, we've directed and invested in comprehensive research that has shaped the scientific community's understanding of SMA. We are currently on the verge of breakthroughs in treatment that will strengthen our children's bodies, extend life, and lead to a cure. We have deep expertise in every aspect of SMAfrom the day-to-day realities to the nuances of care optionsand until we have a cure, well do everything we can to support children and families affected by the disease. Cure SMA is a non-profit organization which has funded and directed over $75 million for leading SMA research programs. We have 34 Chapters throughout the United States and over 115,000 members and supporters. We also host the world's largest Annual SMA Conference with over 1,500 families and researchers from around the world in attendance. Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.Cure SMA Address
925 Busse RdElk Grove Village, IL
United States