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Linda Kobert Email
Research and Communications Specialist . The Myositis Association
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Current Roles
Employees:
24Revenue:
$4.5MAbout
The Myositis Association of America (MAA) was created by Betty Curry in March, 1993, as the Inclusion Body Myositis Association (IBMA), a non-profit corporation. The National Organization of Rare Disorders (NORD) provided the names of 16 patients who became the initial members. Extensive outreach through the medical community and later through the Internet touched off enormous growth. As of January 1, 2003, the name changed to The Myositis Association (TMA) to include the growing membership on every continent. The list of 16 patients has grown to 6,000The Myositis Association Address
6950 Columbia Gateway DriveAlexandria, VA
United States