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Beth Johnston Email
Chief Community Engagement Officer . FSHD Society
Lexington, MA
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How to contact Beth Johnston
Join and see Beth's contact info for free!Current Roles
Employees:
46Revenue:
$15MAbout
The FSHD Society is the world's largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSH Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone. Our Vision: A world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD) Our Mission: Find treatments and a cure for FSHD while empowering our families Our Strategies: - Accelerate the development of treatments and a cure for FSHD - Increase, engage, and empower our stakeholders - Aggressively leverage and expand resources to support our Mission Our Core Values: Research | Community | UrgencyFSHD Society Address
450 Bedford St.Lexington, MA
United States